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Rare Cancers Act 2026

Sections6Effects2

Statutes amended

2 affected Acts; 4 amendments in total. Each block shows the target Act's text with this Act's changes applied.

National Health Service Act 2006

1 amendment · open Act

  1. Section 1E1 change, 3 insertions

    1E Secretary of State's duty to facilitate research etc

    1 In exercising functions in relation to the health service, the Secretary of State must facilitate or otherwise promote—
    a research on matters relevant to the health service, and
    b the use in the health service of evidence obtained from research.
    2 The research that the Secretary must facilitate or otherwise promote under subsection (1)(a) includes research into cancers that in the opinion of the Secretary of State are rare cancers.
    3 In discharging the duty under subsection (1)(a) in relation to those cancers, the Secretary of State must, in particular, ensure that there are such arrangements in place as the Secretary of State considers appropriate to—
    a enable potential participants in clinical trials to be identified and contacted, and
    b ensure that a person (to be known as “the National Specialty Lead for Rare Cancers”) is appointed with a job description that includes promoting and facilitating research into rare cancers by—
    i providing advice in relation to the design and planning of research, and
    ii facilitating collaboration between interested persons.
    4 In this section “rare cancer” means a cancer that affects not more than 1 in 2000 people in the United Kingdom.

Health and Social Care Act 2012

3 amendments · open Act

  1. Section 2611 insertion

    261 Other dissemination of information

    subsections (1) – (5) unchanged

    5A In subsection (5)(da) “relevant clinical trials” means clinical trials in connection with the research and development of orphan medicinal products for the diagnosis, prevention or treatment of cancers that in the opinion of NHS England are rare cancers; and for this purpose—

    subsections (6) – (9) unchanged

  2. Section 2612 insertions

    261 Other dissemination of information

    subsections (1) – (6) unchanged

    6A A power conferred by this section to process information does not authorise the processing of information which would contravene the data protection legislation (but the power is to be taken into account in determining whether the processing would contravene that legislation).
    6B In subsection (6A) “the data protection legislation” and “processing” have the same meanings as in the Data Protection Act 2018 (see section 3 of that Act).

    subsections (7) – (9) unchanged

  3. Section 261(5)1 insertion

    261 Other dissemination of information

    subsections (1) – (4) unchanged

    5 NHS England may also disclose information which it obtains by complying with a direction under section 254 or a request under section 255 (whether or not it falls within subsection (2)) if—

    paragraphs (a) – (d) unchanged

    da the disclosure is made for the purpose of facilitating the carrying out of relevant clinical trials (whether or not in the United Kingdom) by enabling potential participants in those trials to be identified and contacted,

    paragraphs (e) – (f) unchanged

    subsections (6) – (9) unchanged